57 results found

1. STOP DENYING disability compensation! Include any/all autoimmune & neurological diseases/disorder as presumptive illness.

   Assume Veteran's service in Theater of Operations (SWA) is cause of any/all autoimmune/neurological disease/disorders. Assume any display of symptoms during/after Gulf War service is connected/caused/is a result of sevice in SWA & compensate. Don't wait to admit/compensate Vets like those who are sick/dying due to Agent Orange.

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2. Veteran Benefits: Delivering Compensation and Pension and Fiduciary Services

   As research and environmental study evolves or new legislative and regulatory provisions are written regarding illnesses for Gulf War Veterans, the VA Compensation Service of the Veterans Benefits Administration (VBA) performs necessary rule-making and develops field training to support the changes. To further assist Gulf War Veterans, Compensation Service developed two training letters designed to inform and instruct regional office personnel on development and adjudication of disability claims based on Southwest Asia service. VA also completed a regulation to add functional gastrointestinal disorders to the list of disabilities that are presumed to have resulted from service in the Gulf War. The final rule was published and became effective on August 15, 2011. VBA continues to work with the VA/DoD Deployment Health Working Group to identify environmental exposures whether related to the Gulf War or elsewhere. Finally, VBA worked with the VHA on an effort to develop and execute a separation health assessment with DoD, an effort that is intended to reduce the future burden of proving service connection that Veterans often must bear when seeking recognition for exposure-related illnesses and injuries years after service.

   Please provide your comments, questions, and suggestion on how we may improve the Veterans Benefits section of the report.

   As research and environmental study evolves or new legislative and regulatory provisions are written regarding illnesses for Gulf War Veterans, the VA Compensation Service of the Veterans Benefits Administration (VBA) performs necessary rule-making and develops field training to support the changes. To further assist Gulf War Veterans, Compensation Service developed two training letters designed to inform and instruct regional office personnel on development and adjudication of disability claims based on Southwest Asia service. VA also completed a regulation to add functional gastrointestinal disorders to the list of disabilities that are presumed to have resulted from service in the Gulf War.… more

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3. WE SERVED OUR COUNTRY AND HAVE ILLNESSES THAT HAS TAKEN A TOLL ON US AND IT IS LIKE THE V.A. REFUSE TO HELP IN ALL AREA IT IS SO HARD FOR A

   WE SERVED OUR COUNTRY AND HAVE ILLNESSES THAT HAS TAKEN A TOLL ON US AND IT IS LIKE THE GOVERMENT REFUSE TO HELP IN ALL AREA IT IS SO HARD FOR A GULF WAR VETERAN TO GET A CLIAMS APPROVED IT IS SAD WE NEED HELP THAT IS THE BOTTOM LINE

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4. Getting better, but VA still staying away from GWI

   It seems that the regional offices are getting better with granting claims but they still don't want to use the words Gulf war illness. They would rather split up all of the illnesses and put them through separately, rather than just call it Gulf war illness for everything, very strange. But getting there

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5. We stand together in solidarity with all the lives lost due to death and disability

   We are the forgotten generation of Gulf War Deployed Veterans, NonDeployed Gulf War Era Veterans, Operation Enduring Freedom/Operation Iraqi Freedom Veterans, and family members that are suffering with illnesses defined by Gulf War Illness (GWI).

   We collectively see areas for immediate change:
   • Transparency from all agencies involved in the Gulf War Illness
   • All GWI research findings be declassified and shared with the public
   • NonDeployed Gulf War Era Veterans need inclusion in presumption laws/research/treament
   • Registry/Network for Ill Gulf War Era Veterans pre 9/11 through current conflict or until the war is declared closed by Congress
   • Train VA practitioners to identify GWI
   • All outside medical diagnoses and nexus letters should carry more consideration than the C&P exams
   • FAST TRACK on claims and appeals with medically trained raters from 3rd party
   • Uphold the benefit of a doubt clause and stop ignoring Part B of the unemployability regulation
   • Repeal the quota system within the claims process
   • Funded research into alternative medicine and its treatments
   • Medical marijuana research funding for GWI treatment
   • Financial assistance given to veterans awaiting claims decisions to help prevent the financial devastation that results from waiting 2-10 years for decisions

   Improve and apply lessons learned from past practices and policies that can improve today’s programs and services supporting all Gulf War Era Veterans. We stand together in solidarity with all the lives lost due to death and disability.

   We are the forgotten generation of Gulf War Deployed Veterans, NonDeployed Gulf War Era Veterans, Operation Enduring Freedom/Operation Iraqi Freedom Veterans, and family members that are suffering with illnesses defined by Gulf War Illness (GWI).

   We collectively see areas for immediate change:
   • Transparency from all agencies involved in the Gulf War Illness
   • All GWI research findings be declassified and shared with the public
   • NonDeployed Gulf War Era Veterans need inclusion in presumption laws/research/treament
   • Registry/Network for Ill Gulf War Era Veterans pre 9/11 through current conflict or until the war is declared closed by Congress
   • Train… more

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6. Gulf war vets need to find a way to bind together to get what we are due from our government

   Gulf war vets must find a way to get together and fight this together.
   The only way to win this fight is as a unit. We need to form a group for all gulf war vets and fight this with the same devotion as we fought for our country

   81 votes

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7. Make C-file available to Vets and Follow Ttitle 38 rule WHEN IN DOUBT SIDE WITH VET

   Make C-file available to Vets and follow Title 38 rule WHEN IN DOUBT SIDE WITH VET. The garbage I read in my C-file opened my eyes and gave me a clear picture of why my claim stalled. Most of the notes were false or half missing (the parts that support my case). If I didn't know my case I would say I was reading somebody else's C-file.

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8. Veteran Outreach: Getting Out the Word and Listening to the Feedback

   VA is dedicated to improving the lives of Veterans of all eras and their eligible family members and survivors by providing them with the benefits and services they have earned. As research shows there is a lack of awareness when it comes to specific services, and Gulf War Veterans continue to require and rightfully expect timely and accurate information about VA's efforts to support them, VA has worked to develop a proactive and systematic effort for providing this important information and assistance on VA's services and benefits. As a clearinghouse of Gulf War Veterans Illnesses (GWVI) information, VA maintained the Gulf War Veterans Illnesses website www.publichealth.va.gov/exposures/gulfwar/ as a source of information for Veterans, Healthcare Providers, and other Stakeholders. VA conducted a number of GWVI specific outreach events and published news releases for key events during the past year. Moving forward, VA's outreach efforts for GWVI will increasingly leverage evolving technology and social media and work to significantly improve transparency regarding VA's work for this important Veteran population.

   Please provide your comments, questions, and suggestion on how we may improve the Veteran Outreach section of the report

   VA is dedicated to improving the lives of Veterans of all eras and their eligible family members and survivors by providing them with the benefits and services they have earned. As research shows there is a lack of awareness when it comes to specific services, and Gulf War Veterans continue to require and rightfully expect timely and accurate information about VA's efforts to support them, VA has worked to develop a proactive and systematic effort for providing this important information and assistance on VA's services and benefits. As a clearinghouse of Gulf War Veterans Illnesses (GWVI) information, VA maintained the… more

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9. more research is needed to find out about skin rashes on the body.

   have soliders come in and test them

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10. Visibility of VA Gulf War programs and the GW Task Force

    There is a problem when a entiity is not visible to the public. It operates internally making decisions that often are favorable only to that committee while not receiving tangible input from outside sources that might observe disparages the committee cannot. The GWVITF still operates as a closed door invisible entity with no website, no call in VANTS lines or ability to listen in to meetings, public minutes, or pretty much anything other than its annual reports. This is exactly how the defunct DOD Research Working Group functions that makes so many stale bad suggestions year in and out for Gulf War vets. Left to the government Legacy personnel on the task force, as long as this is allowed to operate in the dark it will function much like last year. Unenforceable on policy, and out of touch with a live public. Its clear that VA ORD has a very hand in keeping it this way and would object to anything that would change this. How the RAC steering committee has been stiff armed in all of this is a good example. There needs to be outside involvement on a monthly basis in Gulf War Illness policy from the veteran community that isnt censored or hand selected by VA to produce a OMB freindly good ole boy club to keep comments at bay. Such as the way DOD uses the excuse "If your not chartered by Congress then you cant attend" or should I say internal memorandum policies. Gulf War vets or I should say "Grass Roots" should be welcomed to participate like they were before 1999. When there were 33 of them and they showed up. The Bush administration created the "chartered only" mentality that has not benefitted Gulf War vets these last 10 years. To say there would be outreach would mean veteran involvement, and that has not been the case at least since 2009 when the VA ACGWV disbanded. So we have a problem here of policy and who is pushing it. Is this Presidential endorsed policy, or up to the staff under the Secretary of VA to alter. More has to be done than just saying "We will hear from you next year" and then censor our comments from this report as was done with last years report ( over 150 pages of materials left out ). Outreach cant be just left to VA internally as Environmental Agents had a budget for it and all but shut down on this to include the "Gulf War Review". This needs to be open, and the fact that the Task Force is a closed door entity shows that this to needs changes or some outside post on it. This isnt just a outreach issue, its a policy issue in dealing with the veteran community to include advisory committees. Which I now understand VA wishes to try and muscle the RAC into other committee meetings to save money having its own. What I have seen since the first GWVITF meeting is VA take darker and darker oppressive steps with the last veterans that try to work with it on Gulf war issues. So its time to build a new foundation of trust, restructure, and get rid of the legacy people who keep it in the past. Look to the future.

    There is a problem when a entiity is not visible to the public. It operates internally making decisions that often are favorable only to that committee while not receiving tangible input from outside sources that might observe disparages the committee cannot. The GWVITF still operates as a closed door invisible entity with no website, no call in VANTS lines or ability to listen in to meetings, public minutes, or pretty much anything other than its annual reports. This is exactly how the defunct DOD Research Working Group functions that makes so many stale bad suggestions year in and out for… more

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11. An army of one.

    create a protocol that deals with veterans with gulf war illnesses. There are so many different symptoms from Neurological to Dermatology to Mental Health to Rheumatology etc. Do a trial run with a special task force for a gulf war vet where all these doctors can come together and report all of there findings and recommendations to one clinician to come up with one treatment plan that best suites the individual.I see so many times that each specialist prescribes what they think will work under there specialty on top of the other doctors recommendations, overlapping drugs on top of drugs causing even more problems for the patient and decreasing the quality of life for the veteran.The main goal in my opinion would to be able to use the least amount of drugs and to optimize the mobility and functionality of the Vet, Also by doing this the Veteran is not being bounced around from doctor to doctor with no clue of what the next step is.

    create a protocol that deals with veterans with gulf war illnesses. There are so many different symptoms from Neurological to Dermatology to Mental Health to Rheumatology etc. Do a trial run with a special task force for a gulf war vet where all these doctors can come together and report all of there findings and recommendations to one clinician to come up with one treatment plan that best suites the individual.I see so many times that each specialist prescribes what they think will work under there specialty on top of the other doctors recommendations, overlapping drugs on top of drugs… more

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12. When will the Gulf War Discrimination End?

    It has now been 21 years and VA now wants to hear our comments? I have noticed on many Vet pages the number of deferred Gulf War claims. This can't be due to improperly filled out paperwork, which only means group discrimenation. How can a system such as the Veterans Administration do this to it's own. This is not what Persident Lincold had formulated then for now. The only ones that control this at this time is the present VA Administration. Shame on you Mr. Gingrich and Sec. Shinseki, one saving is I didn't have to serve under ether of you in combat!

    It has now been 21 years and VA now wants to hear our comments? I have noticed on many Vet pages the number of deferred Gulf War claims. This can't be due to improperly filled out paperwork, which only means group discrimenation. How can a system such as the Veterans Administration do this to it's own. This is not what Persident Lincold had formulated then for now. The only ones that control this at this time is the present VA Administration. Shame on you Mr. Gingrich and Sec. Shinseki, one saving is I didn't have to serve under ether of… more

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13. waste of time if VA doctor refuse to follow policy what good is the policy because this desert storm veteran has seen it happen.

    waste of time if VA doctor refuse to follow policy what good is the policy because this desert storm veteran has seen it happen first hand the doctors at the HOUSTON VA COULD CARELESS about desert storm veterans i can offer my medical records as proof -----he crazy need to be on the six floor its all in his head --,We go to the VA for help not to be put down ,Its not like i ask to be sick i am just asking for help because i got sick.

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14. VA Needs to start evaluating vets from that era for TBI since it was not done.I just found this out after 8 years of being medical discharge

    VA Needs to start checking vets for TBI who are experiencing seizures and tennitis. I just found this out after being medically discharged from the Army 8 years ago.

    41 votes

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15. Irritable Bowel Syndrome

    You have delivered a great report, as the other reports along this line. Seems the VA, including Regional Offices, have the freedom to either conform/not conform specifically to the Irritable Bowel Syndrome. Guess it's the same with the other "Conditions". Your report(s) seem to realize that there are problems associated with that conflict, at least read that way. I've filed twice and been denied as not associated with the Gulf War. Didn't have it before I left but starting having it while there and to this day. Made to feel like I'm begging. Will just have to live with it I guess. Would be nice if your Committee had the freedom to review some of the claims and how they were adjudicated. Wouild open their eyes.

    You have delivered a great report, as the other reports along this line. Seems the VA, including Regional Offices, have the freedom to either conform/not conform specifically to the Irritable Bowel Syndrome. Guess it's the same with the other "Conditions". Your report(s) seem to realize that there are problems associated with that conflict, at least read that way. I've filed twice and been denied as not associated with the Gulf War. Didn't have it before I left but starting having it while there and to this day. Made to feel like I'm begging. Will just have to live with it… more

    41 votes

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16. Memory loss and concentration, I never read anything about memory loss and concentration problems.

    I have really bad memory loss and concentration problems. I went from having a great memory to forgetting almost everything. I have a really hard time concentrating on normal daily activities. And trying to learn something new is very difficult.

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17. Why is there no research into the Anthrax Vaccine?

    I am a vet who recieved the Anthrax Vaccine Gen-2 from 1998 to 2000. There is a consistent corelation between the vets who suffer from advers reaction to the vaccine and GWS. I developed Celiac Disease (an autoimmune disease that affects the gastroinestinal area as well as your brain and other organs) and have multiple mental and physical issues that are listed for GWS. My wife has fibromyalga that was brought on from the Vaccine. We can trace the ineptness of the Vaccine for GW Vets and our current generation. It bothers me that VA and DOD has divided us into 2 catagories and attempt to deny that my generation has had any problems. I have read the as many as 1 in 6 who have recieved the Vaccine has suffered longterm medical issues due to it. In both my wife's case and mine we are being treated but it was like pulling teeth to get verification that we were affected by the Vaccine. I ask this question for 2 reasons: it seems that we should all be under the same catagory (GWS) until they can come up with and exact reason that the two long term health issues are not connected, and it would make my generation get the proper care more quickly if we were able to have the same presumtives. I have had to file individual claims for each issue and my wife is not even sure how to file for fibromyalga, which I believe needs to be filed ASAP if we can fall into a presumptive with her. I just have researched this for the last couple years so that I could figure out my issues and to help me not blow out my brains, and I have found far too many similarities to not be coincidental.

    I am a vet who recieved the Anthrax Vaccine Gen-2 from 1998 to 2000. There is a consistent corelation between the vets who suffer from advers reaction to the vaccine and GWS. I developed Celiac Disease (an autoimmune disease that affects the gastroinestinal area as well as your brain and other organs) and have multiple mental and physical issues that are listed for GWS. My wife has fibromyalga that was brought on from the Vaccine. We can trace the ineptness of the Vaccine for GW Vets and our current generation. It bothers me that VA and DOD has divided us… more

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18. RE-EVALUATION OF HEALTH STATUS OF SPOUSES AND CHILDREN OF PERSIAN GULF WAR VETERANS.

    Since 2004 report was out .Spouses and Children issues are stopped from RAC or Task Force Report.

    VA Environmental Agents Service examined "Only" 1,380 spouses and Children as of August 2002.(VA-053 VA Environmental Agents Service Spouses and Children Program )

    None of Spouses had miscarriage or stillbirth where Mysteriously Never got involved this survey. (Pregnancy outcomes among U.S. Gulf War veterans: a population-based survey of 30,000 veterans.(2001)

    Therefore,I don't believe that these numbers and these reports to be correct. I believe that these issues need further review and researched.

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19. Partnerships: Improved Data Sharing with the Department of Defense (DoD)

    DoD and VA provide health care and benefits to the same population at different times in their lives. Environmental exposures occur during active duty whereas the potential clinical consequences can manifest later when the former service member is a Veteran. For this reason it is critical that VA and DoD share clinical and exposure data. The GWVI-TF continued to build robust relationships with DoD, through such forums as the Deployment Health Working Group, to ensure timely and thorough access to data related to military service. The experiences of the Gulf War Veterans continue to influence the development of ongoing data sharing efforts with DoD which should aid both Gulf War Veterans as well as generations of Veterans who follow.

    Please provide your comments, questions, and suggestion on how we may improve the Partnerships section of the report

    DoD and VA provide health care and benefits to the same population at different times in their lives. Environmental exposures occur during active duty whereas the potential clinical consequences can manifest later when the former service member is a Veteran. For this reason it is critical that VA and DoD share clinical and exposure data. The GWVI-TF continued to build robust relationships with DoD, through such forums as the Deployment Health Working Group, to ensure timely and thorough access to data related to military service. The experiences of the Gulf War Veterans continue to influence the development of ongoing data… more

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20. Clinical Education and Training: Putting Clinical Knowledge into Practice

    The GWVI-TF Clinical Education and Training effort focused on improving the VA’s ability to put critical clinical knowledge and expertise at the point of care. Where the Clinical Care work was aimed at synchronizing specialty and primary health care, this effort was in direct support, providing necessary clinical education, training, and subject matter expertise. The Veterans health Administration (VHA) Office of Public Health created a series of training modules now universally available online for patients and clinicians. Additionally, VA hosted a series of exposure seminars to enhance clinician knowledge about the health impacts of various environmental exposures. In the coming year, again in direct support of Clinical Care, this effort will publish an environmental health pocket card for primary care providers and collaborate in the formal development/improvement of a three tiered network of care presented in the prototype clinic for Gulf War health care.

    <p><strong>Please provide your comments, questions, and suggestion on how we may improve the Clinical Education and Training section of the report.</strong></p>

    The GWVI-TF Clinical Education and Training effort focused on improving the VA’s ability to put critical clinical knowledge and expertise at the point of care. Where the Clinical Care work was aimed at synchronizing specialty and primary health care, this effort was in direct support, providing necessary clinical education, training, and subject matter expertise. The Veterans health Administration (VHA) Office of Public Health created a series of training modules now universally available online for patients and clinicians. Additionally, VA hosted a series of exposure seminars to enhance clinician knowledge about the health impacts of various environmental exposures. In the coming… more

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