57 results found

1. Irritable Bowel Syndrome

   You have delivered a great report, as the other reports along this line. Seems the VA, including Regional Offices, have the freedom to either conform/not conform specifically to the Irritable Bowel Syndrome. Guess it's the same with the other "Conditions". Your report(s) seem to realize that there are problems associated with that conflict, at least read that way. I've filed twice and been denied as not associated with the Gulf War. Didn't have it before I left but starting having it while there and to this day. Made to feel like I'm begging. Will just have to live with it I guess. Would be nice if your Committee had the freedom to review some of the claims and how they were adjudicated. Wouild open their eyes.

   You have delivered a great report, as the other reports along this line. Seems the VA, including Regional Offices, have the freedom to either conform/not conform specifically to the Irritable Bowel Syndrome. Guess it's the same with the other "Conditions". Your report(s) seem to realize that there are problems associated with that conflict, at least read that way. I've filed twice and been denied as not associated with the Gulf War. Didn't have it before I left but starting having it while there and to this day. Made to feel like I'm begging. Will just have to live with it… more

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   completed  ·  7 comments  ·  Gulf War Illness  ·  Delete…  ·  Admin →

2. RE-EVALUATION OF HEALTH STATUS OF SPOUSES AND CHILDREN OF PERSIAN GULF WAR VETERANS.

   Since 2004 report was out .Spouses and Children issues are stopped from RAC or Task Force Report.

   VA Environmental Agents Service examined "Only" 1,380 spouses and Children as of August 2002.(VA-053 VA Environmental Agents Service Spouses and Children Program )

   None of Spouses had miscarriage or stillbirth where Mysteriously Never got involved this survey. (Pregnancy outcomes among U.S. Gulf War veterans: a population-based survey of 30,000 veterans.(2001)

   Therefore,I don't believe that these numbers and these reports to be correct. I believe that these issues need further review and researched.

   38 votes

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3. Why are you lying?

   This is not an idea, but fact. How long do you think that the current veterans are going to wait while the VA and DoD pull their head out of their butt, and stop screwing veterans. You lie when you say just "Veterans on 91-92 war in Iraq and Kuwait." What bout us who have served more than one tour, are you telling us that we have to wait another 21 years. Crap that means I will be 52, and my kids adults. Whoever wrote this report, is not a veteran; but a civilian. I hope you enjoy wasting your time reading it. All this is, is a smoke screen for the DoD and VA to keep hurting those who served. I wonder of Shineski still has visitors in the wee hours of the morning? Is that how we can get care?

   Pissed Veteran
   OIF/OEF

   This is not an idea, but fact. How long do you think that the current veterans are going to wait while the VA and DoD pull their head out of their butt, and stop screwing veterans. You lie when you say just "Veterans on 91-92 war in Iraq and Kuwait." What bout us who have served more than one tour, are you telling us that we have to wait another 21 years. Crap that means I will be 52, and my kids adults. Whoever wrote this report, is not a veteran; but a civilian. I hope you enjoy wasting your… more

   9 votes

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4. Here is my problem with it.After 20+ years of struggling with ptsd I was finally diagnosed an recieved a rating but only at 30%. now what a

   After 20+ years I was diagnosed with ptsd but only recieved a 30% rating. what about the past 20 years of hell loosing jobs and destroyed relationships ect. ect. I also have been trying to explain to my doctor that not all of my problem with the cronic fatigue i experience is not due to my weight .I was experiencing it long before i got big. Which th weight is a product of the depression I fight every day. They make you feel like you are trying to get a free ride or something. I have never taken govt. assist. and have always made my own way. I put my ass on the line for my country and would do it again in a second.Show some respect. I only want the help and compensation I deserve no more no less.

   After 20+ years I was diagnosed with ptsd but only recieved a 30% rating. what about the past 20 years of hell loosing jobs and destroyed relationships ect. ect. I also have been trying to explain to my doctor that not all of my problem with the cronic fatigue i experience is not due to my weight .I was experiencing it long before i got big. Which th weight is a product of the depression I fight every day. They make you feel like you are trying to get a free ride or something. I have never taken govt. assist.… more

   19 votes

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   completed  ·  4 comments  ·  Gulf War Illness  ·  Delete…  ·  Admin →

5. The Department of Veterans Affairs needs to update its software that is used for when veterans check-in for their appointments.

   The Department of Veterans Affairs needs to update its software that is used for when veterans check-in for their appointments. This is so that when a veteran that has more than one illness or symptom can have it entered into his computer file for the doctor to see it. At present the nurse will only take one. This does not work for a veteran with undiagnosed illness or a TBI as there are many different symptoms that the veteran may need to report he is suffering from at the same time. As many of these symptoms such as headaches, pains in shoulders, arms, legs, back, and diarrhea do materialize at the same time and need to be looked at and reported. The nurse will ask which one is bothering you the most and will enter that one into the computer and leave the rest out. This has happened to me many times over the past 19 years.
   When the veteran files a claim, the rating specialist does not see that he had complained about the rest of the illnesses only the one in the system the nurse entered.
   
   When I go to the doctor I have a multitude of problems and the nurse will only enter one item in the computer. The doctor will only talk about that one issue due to the short time he is given to see me. How can we get better care for the other 8 issues when I cannot get them into the computer?
   Once the VA is able to track all the symptoms that the Gulf War veterans is having at the point of checking for each appointment will we start to understand the magnitude of the problem. This update is not that hard to do. As I have done programing in the past myself.
   Once a researcher starts looks at all of the Gulf War veterans and illnesses that they have been diagnosed with (and any old depression and PTSD should be relooked at the WRIISC) or undiagnosed to see what type of pattern there is. This should be ongoing at interval of no more than 3 years over the next 28 years. Then will we understand what the environmental hazards have done to us. Tracking of the veterans and reporting of gulf war veterans has to be done in accordance to the times of deployment due to the fact that the war covers a 20+ year time frame. The environment after Khamisiyah and the oil well fires being extinguished is different than that from operation Iraqi freedom. When the air war started it blow up chemical plant and supplies where the winds sent it towards us. Desert storm was the only ones that took PB pill. OIF had some of their own exposures.
   James A. Bunker
   Executive Director
   National Gulf War Resource Center
   Toll free 866-531-7183
   WWW.NGWRC.ORG
   Face Book
   http://www.facebook.com/group.php?v=info&gid=7500982521

   The Department of Veterans Affairs needs to update its software that is used for when veterans check-in for their appointments. This is so that when a veteran that has more than one illness or symptom can have it entered into his computer file for the doctor to see it. At present the nurse will only take one. This does not work for a veteran with undiagnosed illness or a TBI as there are many different symptoms that the veteran may need to report he is suffering from at the same time. As many of these symptoms such as headaches, pains… more

   15 votes

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6. WE SERVED OUR COUNTRY AND HAVE ILLNESSES THAT HAS TAKEN A TOLL ON US AND IT IS LIKE THE V.A. REFUSE TO HELP IN ALL AREA IT IS SO HARD FOR A

   WE SERVED OUR COUNTRY AND HAVE ILLNESSES THAT HAS TAKEN A TOLL ON US AND IT IS LIKE THE GOVERMENT REFUSE TO HELP IN ALL AREA IT IS SO HARD FOR A GULF WAR VETERAN TO GET A CLIAMS APPROVED IT IS SAD WE NEED HELP THAT IS THE BOTTOM LINE

   125 votes

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7. I was deployed to Kuwait in 2000 of April, I also went Bosnia, Macedonia Kosovo 2002

   I am Mr. Rhaney S. veteran who recieved the Anthrax Vaccine Gen-2 from 1998 to 2000. There is a consistent corelation between the vets who suffer from advers reaction to the vaccine. I am now being treated for PTSD, I'm constantly having weakness mostly over my body. also severe respiratory disease. I'm seeing a Neurologist in Augusta,GA. My VA hospital in South Carolina don't what it is. My legs buckle, arms are weak blurred vision most times. I use nebulizer, inhalers, pain medecine help me.

   2 votes

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8. A Toxic Waste Dump

   When you take into consideration CIA's report entitled Iraq's Weapons of Mass Destruction dated Oct 2002 and the Army's report entitled Chemical and Biological Defense U.S. Forces Are Not Adequately Equipped to Detect All Threats dated January 1993, used in conjunction with a phenomenom only found in the Middle East and that is atmospheric ducting it all comes together.

   Fox vehicles alarming constantly, senior echelon announcing they were false alarms. Then recognize the DOD was quick to provide field changes to increase their capability. Pvt Fisher coming into contact with Mustard Gas and CDR Dunn processing the sample in Iraq getting a positive reading, but briefing Congress stating the findings were insufficient. I can't help but refer back to the UNSCOM inventories in Iraq of weapons storage facilities, and the coverups provided by Saddam. We knew Iraq used CW against Iran and the Kurds in 1988, I was in the Persian Gulf then. Coalition Forces bombed the ammunition facilities during DS, forcing chemicals into the atmosphere. Anywhere there was a hole in the atmosphere the chemicals would have dumped out onto unexpected troops. Read any Navy Lessons Learned message in the COMIDEASTFOR AOR and you will find this to be a fact, with regards to the ducting system in the atmosphere. I could take a line of sight circuit that normally operates at 30 miles line of sight, and talk 450 miles two or three times per month if the conditions were right.

   I've since had veterans sitting across my desk, as a CVSO, and have listen to numerous cases where they were under scud attack and afterwards experienced typical symptoms of CW release. As an Enlisted Surface Warfare qualified sailor, the prerequisite of which was Chemical, Biological, Radiation (CBR) Training, my initial reaction in DS is they were experiencing attacks from nerve agents.

   Dr. Robert Haley brought that revelation to light. But you hear very little these days. Most veterans in my county want nothing to do with the VA after receiving their denial letters in the claim process. Not sure if 20 years later, this is really going to convince them to even consider participating. They need more than promises and health care they end up paying for.

   We have had a little success with GWS claims, and for that we're grateful, but for those that were denied, they still have the chronic conditions today, just a medical doctor put a diagnosis to them and they're paying to be treated, outside the VAMC - they were initially told by the VAMC it was a reaction because of nerves. That is a stigma that will follow the VAMC and VA from here until their demise.

   When you take into consideration CIA's report entitled Iraq's Weapons of Mass Destruction dated Oct 2002 and the Army's report entitled Chemical and Biological Defense U.S. Forces Are Not Adequately Equipped to Detect All Threats dated January 1993, used in conjunction with a phenomenom only found in the Middle East and that is atmospheric ducting it all comes together.

   Fox vehicles alarming constantly, senior echelon announcing they were false alarms. Then recognize the DOD was quick to provide field changes to increase their capability. Pvt Fisher coming into contact with Mustard Gas and CDR Dunn processing the sample in Iraq… more

   26 votes

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9. Gulf war vets need to find a way to bind together to get what we are due from our government

   Gulf war vets must find a way to get together and fight this together.
   The only way to win this fight is as a unit. We need to form a group for all gulf war vets and fight this with the same devotion as we fought for our country

   81 votes

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10. Getting better, but VA still staying away from GWI

    It seems that the regional offices are getting better with granting claims but they still don't want to use the words Gulf war illness. They would rather split up all of the illnesses and put them through separately, rather than just call it Gulf war illness for everything, very strange. But getting there

    108 votes

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11. Amyotrophic Lateral Sclerosis and multiple sclerosis

    This report stated that the "ORD is committed to funding research that improves VA’s understanding and ability to treat illnesses, such as Amyotrophic Lateral Sclerosis (ALS) and Multiple Sclerosis (MS), which may occur at higher prevalence in Gulf War Veterans". I would like to focus, in particular, on the diagnosis of ALS at much higher rates than other veteran population groups in general. As a registered nurse at a private hospital I personally witnessed the terminal wean of a Gulf veteran with ALS. As a VA employee, I witnessed the effects of this diagnosis, and subsequent death, on a fellow VA employee who was a Gulf War veteran.

    Prior studies by the VA indicated that we (Gulf War (GW) Veterans) had as much as a 2 to 4 times greater risk of developing this disease than the general population. Yet, the VA has opened the gates for service-connection for ALS to essentially all veterans because of a one-times greater risk for "all" veterans. In so doing the VA has minimalized the stark chasm between the rate of this disease in GW vets versus other veteran population groups. The VA should conduct the necessary research into the cause or causes of this disease in GW vets (MS as well), in particular. This may provide an explanation for other unexplained illnesses from which we suffer. Certainly the other veteran groups should also be service-connected for this disease, but please don't ignore the obvious distinction between the rate of incurrance for other veteran populations and the GW veterans.

    This report stated that the "ORD is committed to funding research that improves VA’s understanding and ability to treat illnesses, such as Amyotrophic Lateral Sclerosis (ALS) and Multiple Sclerosis (MS), which may occur at higher prevalence in Gulf War Veterans". I would like to focus, in particular, on the diagnosis of ALS at much higher rates than other veteran population groups in general. As a registered nurse at a private hospital I personally witnessed the terminal wean of a Gulf veteran with ALS. As a VA employee, I witnessed the effects of this diagnosis, and subsequent death, on a fellow… more

    16 votes

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12. waste of time if VA doctor refuse to follow policy what good is the policy because this desert storm veteran has seen it happen.

    waste of time if VA doctor refuse to follow policy what good is the policy because this desert storm veteran has seen it happen first hand the doctors at the HOUSTON VA COULD CARELESS about desert storm veterans i can offer my medical records as proof -----he crazy need to be on the six floor its all in his head --,We go to the VA for help not to be put down ,Its not like i ask to be sick i am just asking for help because i got sick.

    43 votes

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13. As a service-connected Gulf War era veteran with the Southwest Asia medal Operation: Southern Watch

    Supplements are expensive and most useful in improving quality of life long-term. Why do we have to pay for them? Why does it always have to be Big Pharma calling the shots on medicine when there are natural herbal products just as effective? And why does VA ignore dental emergencies? What about Professor Garth Nicolson getting ignored like Dr. Roger Billica? Thus these matters I submit for your review. Sincerely, Shaun K Orris.

    13 votes

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14. 1-800- PEGGY

    Great idea if you could really find out any information from the 800 number. Many of the Operators are uncorteous and rude. This is probably from being treated that way also by a few vets. Also and I m very serious if you have a real question concerning your claim the only outlet is Ebenefits, 800 number or drive a few hours and ask the customer contact team and be told they don't have the manpower to find out because they can't leave the desk empty. Just think of the money and savings that we would have if we canned both useless systems. They were put out there to impress civilians with the great work that the VA has been doing. It is a step in a direction away from direct face to face. When the llack of two way communications occurs as the VA continues to pursuse problems will and do arise as can be noted here by the many posts. We NEED a real contact number fo people that can make a difference and that won't blow us off. So I ask VA what is the numbers to contact the adjudcator of a claim, the Office of the Inspector General, The Secrateries number? After all the buck stops with him. Lets have a transparent system that works for all and not just for a few.

    Great idea if you could really find out any information from the 800 number. Many of the Operators are uncorteous and rude. This is probably from being treated that way also by a few vets. Also and I m very serious if you have a real question concerning your claim the only outlet is Ebenefits, 800 number or drive a few hours and ask the customer contact team and be told they don't have the manpower to find out because they can't leave the desk empty. Just think of the money and savings that we would have if we canned… more

    9 votes

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15. Return equipment
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16. An army of one.

    create a protocol that deals with veterans with gulf war illnesses. There are so many different symptoms from Neurological to Dermatology to Mental Health to Rheumatology etc. Do a trial run with a special task force for a gulf war vet where all these doctors can come together and report all of there findings and recommendations to one clinician to come up with one treatment plan that best suites the individual.I see so many times that each specialist prescribes what they think will work under there specialty on top of the other doctors recommendations, overlapping drugs on top of drugs causing even more problems for the patient and decreasing the quality of life for the veteran.The main goal in my opinion would to be able to use the least amount of drugs and to optimize the mobility and functionality of the Vet, Also by doing this the Veteran is not being bounced around from doctor to doctor with no clue of what the next step is.

    create a protocol that deals with veterans with gulf war illnesses. There are so many different symptoms from Neurological to Dermatology to Mental Health to Rheumatology etc. Do a trial run with a special task force for a gulf war vet where all these doctors can come together and report all of there findings and recommendations to one clinician to come up with one treatment plan that best suites the individual.I see so many times that each specialist prescribes what they think will work under there specialty on top of the other doctors recommendations, overlapping drugs on top of drugs… more

    48 votes

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17. Care when submitting a new claim.

    I have numerous illnesses that can be related to my time in the Gulf. But, like many Vets who already have a disability rating, it is a crap shoot to submit these new found disabilities. The VA will open your entire file and may lower existing ratings while considering the new claims. I am, and have been 100% 'IU' (Individual Unemployable' for nearly a decade now. Although my current conditions worsen and the prescence of new conditions persist, I dare not complain nor submit the new claims. I was also a former Service Officer for one of the Nationally known VSO's. They are taking this same stand. The VA many times (depending on the rater) lower your ratings. The VA needs to protect the Veterans better then their old 5, 10, and 20 year rules on disability ratings. Veterans should be able to submit for increased claims or new claims without the VA reassessing the Veterans current disability ratings.

    I have numerous illnesses that can be related to my time in the Gulf. But, like many Vets who already have a disability rating, it is a crap shoot to submit these new found disabilities. The VA will open your entire file and may lower existing ratings while considering the new claims. I am, and have been 100% 'IU' (Individual Unemployable' for nearly a decade now. Although my current conditions worsen and the prescence of new conditions persist, I dare not complain nor submit the new claims. I was also a former Service Officer for one of the Nationally known… more

    12 votes

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18. Visibility of VA Gulf War programs and the GW Task Force

    There is a problem when a entiity is not visible to the public. It operates internally making decisions that often are favorable only to that committee while not receiving tangible input from outside sources that might observe disparages the committee cannot. The GWVITF still operates as a closed door invisible entity with no website, no call in VANTS lines or ability to listen in to meetings, public minutes, or pretty much anything other than its annual reports. This is exactly how the defunct DOD Research Working Group functions that makes so many stale bad suggestions year in and out for Gulf War vets. Left to the government Legacy personnel on the task force, as long as this is allowed to operate in the dark it will function much like last year. Unenforceable on policy, and out of touch with a live public. Its clear that VA ORD has a very hand in keeping it this way and would object to anything that would change this. How the RAC steering committee has been stiff armed in all of this is a good example. There needs to be outside involvement on a monthly basis in Gulf War Illness policy from the veteran community that isnt censored or hand selected by VA to produce a OMB freindly good ole boy club to keep comments at bay. Such as the way DOD uses the excuse "If your not chartered by Congress then you cant attend" or should I say internal memorandum policies. Gulf War vets or I should say "Grass Roots" should be welcomed to participate like they were before 1999. When there were 33 of them and they showed up. The Bush administration created the "chartered only" mentality that has not benefitted Gulf War vets these last 10 years. To say there would be outreach would mean veteran involvement, and that has not been the case at least since 2009 when the VA ACGWV disbanded. So we have a problem here of policy and who is pushing it. Is this Presidential endorsed policy, or up to the staff under the Secretary of VA to alter. More has to be done than just saying "We will hear from you next year" and then censor our comments from this report as was done with last years report ( over 150 pages of materials left out ). Outreach cant be just left to VA internally as Environmental Agents had a budget for it and all but shut down on this to include the "Gulf War Review". This needs to be open, and the fact that the Task Force is a closed door entity shows that this to needs changes or some outside post on it. This isnt just a outreach issue, its a policy issue in dealing with the veteran community to include advisory committees. Which I now understand VA wishes to try and muscle the RAC into other committee meetings to save money having its own. What I have seen since the first GWVITF meeting is VA take darker and darker oppressive steps with the last veterans that try to work with it on Gulf war issues. So its time to build a new foundation of trust, restructure, and get rid of the legacy people who keep it in the past. Look to the future.

    There is a problem when a entiity is not visible to the public. It operates internally making decisions that often are favorable only to that committee while not receiving tangible input from outside sources that might observe disparages the committee cannot. The GWVITF still operates as a closed door invisible entity with no website, no call in VANTS lines or ability to listen in to meetings, public minutes, or pretty much anything other than its annual reports. This is exactly how the defunct DOD Research Working Group functions that makes so many stale bad suggestions year in and out for… more

    71 votes

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19. Please explain what is a cardio neurological symptom,
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20. Group of docters sit down with patient instead of pt seeking individual drs throught a yr

    Need a group of drs one overseening, three examing. Then set treatment plan. This way all drs are in sync . Pt does not have go throught 4 visitis a month , being pushed to next dr. The blame game stops and treatment plan starts. Ortho sends to rehumatology,they send to neuro, they send to primary, primary sends topain clinic.

    21 votes

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